{"id":13705,"date":"2021-06-08T09:57:44","date_gmt":"2021-06-08T13:57:44","guid":{"rendered":"https:\/\/clone.arsacs.com\/?page_id=13705"},"modified":"2026-04-10T15:07:14","modified_gmt":"2026-04-10T19:07:14","slug":"conferences-events","status":"publish","type":"page","link":"https:\/\/2026.arsacs.com\/fr\/conferences-events\/","title":{"rendered":"Conferences & Events"},"content":{"rendered":"
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Upcoming Conferences & Events<\/h2>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n
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\"Running<\/span><\/a><\/div>

Running in support of families affected by ARSACS<\/a><\/h2>

Avr 8, 2026<\/span><\/p>

On November 1, 2024, Christos Scarpinato lost his mother to Autosomal Recessive Spastic Ataxia of Charlevoix\u2013Saguenay (ARSACS), a rare and degenerative neurological disease. Two years later, he is taking on a meaningful challenge: running a marathon in her memory and…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Dimethyl Fumarate Tested in an ARSACS Mouse Model<\/a><\/h2>

Mar 31, 2026<\/span><\/p>

Consult the research report by Drs. Justin Wolters and Huaxia Wang on their study of dimethyl fumarate in the ARSACS mouse model. This work was made possible through the financial support of the Ataxia Charlevoix-Saguenay Foundation. Read the report here.<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"Infolettre<\/span><\/a><\/div>

Infolettre #6 \u00c9dition Hiver 2026<\/a><\/h2>

Mar 12, 2026<\/span><\/p>

Dans cette \u00e9dition, nous mettons en lumi\u00e8re deux rapports scientifiques r\u00e9cemment publi\u00e9s sur l\u2019ARSACS. Nous annon\u00e7ons \u00e9galement notre appel d\u2019offres pour les projets de recherche 2026 et partageons des informations sur notre prochain symposium \u00e0 Atlanta (\u00c9tats-Unis)….<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"Newsletter<\/span><\/a><\/div>

Infolettre #6 \u00c9dition Hiver 2026<\/a><\/h2>

Mar 12, 2026<\/span><\/p>

We are excited to share the latest news from the Ataxia Charlevoix\u2013Saguenay Foundation. In this edition, we highlight 2 published scientific reports on ARSACS. We announce our 2026 Research Grants Call for Proposals, and share details about our upcoming Symposium in…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"8e<\/span><\/a><\/div>

8e \u00e9dition du Symposium ARSACS<\/a><\/h2>

Mar 5, 2026<\/span><\/p>

Nous sommes heureux d\u2019annoncer la 8e \u00e9dition du Symposium ARSACS, qui se tiendra le 9 novembre 2026, \u00e0 titre de r\u00e9union satellite officielle du Congr\u00e8s international sur la recherche sur les ataxies (ICAR) \u00e0 Atlanta. Ce symposium en pr\u00e9sentiel r\u00e9unira des chercheurs…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"8th<\/span><\/a><\/div>

8th edition of the ARSACS Symposium<\/a><\/h2>

Mar 5, 2026<\/span><\/p>

We are pleased to announce the 8th edition of the ARSACS Symposium, to be held on November 9, 2026, as an official satellite meeting of the International Congress for Ataxia Research (ICAR) in Atlanta. This in-person event will bring together leading researchers and…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"Une<\/span><\/a><\/div>

Une voie vers de nouvelles strat\u00e9gies de traitement de l\u2019ARSACS<\/a><\/h2>

F\u00e9v 23, 2026<\/span><\/p>

Lisez le r\u00e9cent rapport de Stefan Strack sur l’ARSACS, notamment ses travaux r\u00e9ussis sur l’administration du g\u00e8ne Sacsin humain complet en th\u00e9rapie g\u00e9nique. Lire l’article (disponible en anglais seulement).<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"Developing<\/span><\/a><\/div>

Developing new approaches to treating ARSACS<\/a><\/h2>

F\u00e9v 23, 2026<\/span><\/p>

Read all about Stefan Strack\u2019s recent report on ARSACS, especially with his work successfully delivering the full-length humain Sacsin in gene therapy. Read the article<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Appel d’offres 2026 – Financement de la recherche<\/a><\/h2>

F\u00e9v 19, 2026<\/span><\/p>

Pour plus d’information:Appel d’offre – Financement Soumettre une demande 2026<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"2026<\/span><\/a><\/div>

2026 Research Grants Call for Proposals<\/a><\/h2>

F\u00e9v 19, 2026<\/span><\/p>

For more information :Call for Proposal To apply: Application Form<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Developing conditional mouse models and new approaches to treating ARSACS \u2013 by Dr. Stefan Strack, University of Iowa Carver College of Medicine<\/a><\/h2>

F\u00e9v 1, 2026<\/span><\/p>

Developing conditional mouse models and new approaches to treating ARSACS \u2013 by Dr. Stefan Strack, University of Iowa Carver College of Medicine . This project was funded by the ARSACS Foundation in 2024\u20132025<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"D\u00e9couvrez<\/span><\/a><\/div>

D\u00e9couvrez le plus r\u00e9cent article des Dres Watt et McKinney<\/a><\/h2>

Jan 13, 2026<\/span><\/p>

“Alterations in the Na+\/H+ Exchanger NHE6 and Glutamate Transporters may Influence Purkinje Cell Fate in ARSACS”- article publi\u00e9 dans le Cerebellum Journal en 2025. Consultez le rapport complet ici<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"Discover<\/span><\/a><\/div>

Discover the latest article from Drs. Watt & McKinney<\/a><\/h2>

Jan 13, 2026<\/span><\/p>

“Alterations in the Na+\/H+ Exchanger NHE6 and Glutamate Transporters may Influence Purkinje Cell Fate in ARSACS” article published recently in the Cerebellum journal. Read the full report here<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Towards glial-targeted therapies of ARSACS \u2013 by Drs Herrera\/Fernandes\/Adams, University of Lisbon \/ Bilkent University<\/a><\/h2>

Jan 8, 2026<\/span><\/p>

Towards glial-targeted therapies of ARSACS \u2013 by Drs Herrera\/Fernandes\/Adams, University of Lisbon \/ Bilkent University . This project was funded by the ARSACS Foundation in 2022-2023<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Retinal pigment epithelium (RPE) cell system to uncover the molecular mechanisms of ARSACS-related retinal defects \u2013 by Dr. Daniele Galatolo, IRCCS Fondazione Stella Maris, Pisa, Italy<\/a><\/h2>

Jan 8, 2026<\/span><\/p>

Retinal pigment epithelium (RPE) cell system to uncover the molecular mechanisms of ARSACS-related retinal defects \u2013 by Dr. Daniele Galatolo, IRCCS Fondazione Stella Maris, Pisa, Italy . This project was funded by the ARSACS Foundation in 2022-2023<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Understanding the role of Metals in ARSACS \u2013 by Dr. Graham George, University of Saskatchewan<\/a><\/h2>

Jan 8, 2026<\/span><\/p>

Understanding the role of Metals in ARSACS \u2013 by Dr. Graham George, University of Saskatchewan funded jointly by the Foundation and the Richardson Research Fund in 2020-2021<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"1.4<\/span><\/a><\/div>

1.4 millions raised for research<\/a><\/h2>

Jan 8, 2026<\/span><\/p>

On November 27,2025 the 18th edition of the D\u00eener des Producteurs took place. The evening was a true success, with nearly $1.4 million raised in support of research. A special thank-you to our guest chef and winemaker: Chef Julien Royer of Odette in Singapore, as well…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"1,4<\/span><\/a><\/div>

1,4 M$ amass\u00e9s pour la recherche<\/a><\/h2>

Jan 8, 2026<\/span><\/p>

Le 27 novembre dernier a eu lieu la 18e \u00e9dition du D\u00eener des Producteurs. La soir\u00e9e a connu un v\u00e9ritable succ\u00e8s et pr\u00e8s de 1,4 million de dollars ont \u00e9t\u00e9 amass\u00e9s au profit de la recherche. Un merci tout particulier \u00e0 notre chef et vigneron invit\u00e9s : le chef Julien…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"World<\/span><\/a><\/div>

World Orphan Drug Congress\u00a02025<\/a><\/h2>

Jan 5, 2026<\/span><\/p>

En novembre dernier, l\u2019Ataxie Charlevoix-Saguenay a brillamment \u00e9t\u00e9 repr\u00e9sent\u00e9e au\u00a0World Orphan Drug Congress\u00a0\u00e0 Amsterdam. En tant que conf\u00e9renciers, les Drs Francesca Maltecca, Daniele De Ritis, Bart van de Warrenburg et Sonia Gobeil ont partag\u00e9 leur expertise et…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

\"World<\/span><\/a><\/div>

World Orphan Drug Congress 2025<\/a><\/h2>

Jan 5, 2026<\/span><\/p>

Last November, Charlevoix\u2013Saguenay Ataxia Foundation was brilliantly represented at the World Orphan Drug Congress in Amsterdam. As speakers, Drs. Francesca Maltecca, Daniele De Ritis, Bart van de Warrentburg, and Sonia Gobeil shared their expertise and unwavering…<\/p>\n<\/div>read more…<\/a><\/div><\/article><\/div><\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n

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Past Conferences and Events<\/h1>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n
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Running in support of families affected by ARSACS<\/a><\/h2>

Avr 8, 2026<\/span><\/p>

On November 1, 2024, Christos Scarpinato lost his mother to Autosomal Recessive Spastic Ataxia of Charlevoix\u2013Saguenay (ARSACS), a rare and degenerative neurological disease. Two years later, he is taking on a meaningful challenge: running a marathon in her memory and…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Dimethyl Fumarate Tested in an ARSACS Mouse Model<\/a><\/h2>

Mar 31, 2026<\/span><\/p>

Consult the research report by Drs. Justin Wolters and Huaxia Wang on their study of dimethyl fumarate in the ARSACS mouse model. This work was made possible through the financial support of the Ataxia Charlevoix-Saguenay Foundation. Read the report here.<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Infolettre #6 \u00c9dition Hiver 2026<\/a><\/h2>

Mar 12, 2026<\/span><\/p>

Dans cette \u00e9dition, nous mettons en lumi\u00e8re deux rapports scientifiques r\u00e9cemment publi\u00e9s sur l\u2019ARSACS. Nous annon\u00e7ons \u00e9galement notre appel d\u2019offres pour les projets de recherche 2026 et partageons des informations sur notre prochain symposium \u00e0 Atlanta (\u00c9tats-Unis)….<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Infolettre #6 \u00c9dition Hiver 2026<\/a><\/h2>

Mar 12, 2026<\/span><\/p>

We are excited to share the latest news from the Ataxia Charlevoix\u2013Saguenay Foundation. In this edition, we highlight 2 published scientific reports on ARSACS. We announce our 2026 Research Grants Call for Proposals, and share details about our upcoming Symposium in…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

8e \u00e9dition du Symposium ARSACS<\/a><\/h2>

Mar 5, 2026<\/span><\/p>

Nous sommes heureux d\u2019annoncer la 8e \u00e9dition du Symposium ARSACS, qui se tiendra le 9 novembre 2026, \u00e0 titre de r\u00e9union satellite officielle du Congr\u00e8s international sur la recherche sur les ataxies (ICAR) \u00e0 Atlanta. Ce symposium en pr\u00e9sentiel r\u00e9unira des chercheurs…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

8th edition of the ARSACS Symposium<\/a><\/h2>

Mar 5, 2026<\/span><\/p>

We are pleased to announce the 8th edition of the ARSACS Symposium, to be held on November 9, 2026, as an official satellite meeting of the International Congress for Ataxia Research (ICAR) in Atlanta. This in-person event will bring together leading researchers and…<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Une voie vers de nouvelles strat\u00e9gies de traitement de l\u2019ARSACS<\/a><\/h2>

F\u00e9v 23, 2026<\/span><\/p>

Lisez le r\u00e9cent rapport de Stefan Strack sur l’ARSACS, notamment ses travaux r\u00e9ussis sur l’administration du g\u00e8ne Sacsin humain complet en th\u00e9rapie g\u00e9nique. Lire l’article (disponible en anglais seulement).<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Developing new approaches to treating ARSACS<\/a><\/h2>

F\u00e9v 23, 2026<\/span><\/p>

Read all about Stefan Strack\u2019s recent report on ARSACS, especially with his work successfully delivering the full-length humain Sacsin in gene therapy. Read the article<\/p>\n<\/div>read more…<\/a><\/div><\/article>

Appel d’offres 2026 – Financement de la recherche<\/a><\/h2>

F\u00e9v 19, 2026<\/span><\/p>

Pour plus d’information:Appel d’offre – Financement Soumettre une demande 2026<\/p>\n<\/div>read more…<\/a><\/div><\/article><\/div>

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<\/div><\/div>","protected":false},"excerpt":{"rendered":"

On November 1, 2024, Christos Scarpinato lost his mother to Autosomal Recessive Spastic Ataxia of Charlevoix\u2013Saguenay (ARSACS), a rare and degenerative neurological disease. Two years later, he is taking on a meaningful challenge: running a marathon in her memory and to help advance research. On this occasion, a fundraising campaign has been launched to support […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-13705","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=13705"}],"version-history":[{"count":36,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705\/revisions"}],"predecessor-version":[{"id":25971,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/pages\/13705\/revisions\/25971"}],"wp:attachment":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=13705"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}