{"id":23296,"date":"2026-01-05T14:50:44","date_gmt":"2026-01-05T19:50:44","guid":{"rendered":"https:\/\/arsacs.com\/?p=23296"},"modified":"2026-03-16T18:18:43","modified_gmt":"2026-03-16T22:18:43","slug":"world-orphan-drug-congress-in-amsterdam","status":"publish","type":"post","link":"https:\/\/2026.arsacs.com\/fr\/world-orphan-drug-congress-in-amsterdam\/","title":{"rendered":"World Orphan Drug Congress 2025"},"content":{"rendered":"<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p>Last November, Charlevoix\u2013Saguenay Ataxia Foundation was brilliantly represented at the World Orphan Drug Congress in Amsterdam. As speakers, Drs. Francesca Maltecca, Daniele De Ritis, Bart van de Warrentburg, and Sonia Gobeil shared their expertise and unwavering commitment, helping to spotlight ongoing research and bring hope to individuals and families affected by this rare disease.<\/p>\n\n\n\n<p>The Charlevoix\u2013Saguenay Ataxia Foundation was also present with an exhibition booth, offering a valuable opportunity to meet participants, foster meaningful connections, and raise awareness of its mission on the international stage.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23321\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-1024x768.jpeg\" alt=\"\" class=\"wp-image-23321\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-980x735.jpeg 980w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9ed177da-7b2f-4ba6-a266-ee03ec3a3475-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23317\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-1024x768.jpeg\" alt=\"\" class=\"wp-image-23317\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-980x735.jpeg 980w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/60fe76ad-94ba-4418-aef6-27946c4d5cb7-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23313\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-1024x768.jpeg\" alt=\"\" class=\"wp-image-23313\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-980x735.jpeg 980w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/9955e919-e523-4f0d-ad72-41785c4481d0-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"23309\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-1024x768.jpeg\" alt=\"\" class=\"wp-image-23309\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-980x735.jpeg 980w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/b00513a0-f872-457a-9509-90b134b91f79-480x360.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"480\" data-id=\"23301\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-rotated.jpg\" alt=\"\" class=\"wp-image-23301\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-rotated.jpg 640w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6321-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 640px, 100vw\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"480\" data-id=\"23297\" src=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-rotated.jpg\" alt=\"\" class=\"wp-image-23297\" srcset=\"https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-rotated.jpg 640w, https:\/\/2026.arsacs.com\/wp-content\/uploads\/2026\/01\/thumbnail_IMG_6322-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 640px, 100vw\" \/><\/figure>\n<\/figure>","protected":false},"excerpt":{"rendered":"<p>Last November, Charlevoix\u2013Saguenay Ataxia Foundation was brilliantly represented at the World Orphan Drug Congress in Amsterdam. As speakers, Drs. Francesca Maltecca, Daniele De Ritis, Bart van de Warrentburg, and Sonia Gobeil shared their expertise and unwavering commitment, helping to spotlight ongoing research and bring hope to individuals and families affected by this rare disease. The [&#8230;]<\/p>\n","protected":false},"author":3,"featured_media":23305,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10,6],"tags":[],"class_list":["post-23296","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-conferences","category-news"],"_links":{"self":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23296","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/comments?post=23296"}],"version-history":[{"count":4,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23296\/revisions"}],"predecessor-version":[{"id":25165,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/posts\/23296\/revisions\/25165"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/media\/23305"}],"wp:attachment":[{"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/media?parent=23296"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/categories?post=23296"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/2026.arsacs.com\/fr\/wp-json\/wp\/v2\/tags?post=23296"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}