Our Mission
The Ataxia Charlevoix-Saguenay Foundation’s mission is to discover and develop a treatment for the Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)
The Ataxia Charlevoix-Saguenay Foundation is a federally registered charity established in 2006. The Foundation is supported entirely by private donations and volunteers to fund scientific research on ARSACS. From the donations and other fundraising activities, 98% goes directly to fund research projects.
What We Do
RAISE FUNDS
The Ataxia Charlevoix-Saguenay Foundation is a charitable organization supported entirely by private donations. Different events are organized during the year by families, friends and community groups to raise funds to support research on ARSACS.
SPEND ON RESEARCH
The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Several research projects on ARSACS are currently funded by the Foundation in Canada and abroad. Over 98% of the funds raised are allocated to research.
PRECLINICAL AND CLINICAL TRIALS
The Foundation is ready to conduct preclinical and clinical trials. It has the expertise and the tools available. Furthermore, the existing ARSACS International Patient Registry is a good source of potential patients interested in participating in such trials.
ASSEMBLE A GREAT TEAM
Since its creation, the Foundation has been successful in assembling a great team at all levels of the organization (board, advisors, researchers, contributors and partners). The researchers are well respected in their field and have an international reputation for excellence.
DISCOVER
The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS.
Researchers
The Ataxia Charlevoix-Saguenay Foundation research team is composed of many researchers around the world. The researchers are well respected in their field and have an international reputation for their expertise.
Every year, the Foundation finances several ARSACS research projects.
OUR TEAM
Founders
The Ataxia Charlevoix-Saguenay Foundation was founded in 2006
" Our journey began as concerned parents driven by the belief that every child deserves hope and a future free from this rare disease ARSACS. We are committed tiressely pursuing research and breakthroughs fuelled by the hope of finding a treatment that will improve the lives of not only our children by all those affected by this condition".
Board of Directors
