A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. The presentation video titled “Ataxia of…

Last April, Sonia Gobeil was interviewed by CheckRare during the World Orphan Drug Congress (WODC). This is a valuable opportunity to raise awareness for ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) and to highlight the importance of ongoing…

As part of the World Orphan Drug Congress, this session was led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.

As part of the World Orphan Drug Congress, this conference was presented by Alexandre Paré (McGill PhD student).

This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the…

This webinar, hosted by Dr. Justin Wolter, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars

February 14th 2025 – This webinar was presented by Sonia Gobeil (co-founder) and Dr. Benoit Gentil as part of the month of ‘Zébrier 2025’, organized by the Regroupement québécois des maladies orphelines. View here

February 13, 2025 – This webinar, hosted by Dr. Nicolas Dupré and Dr. Élise Duchesne, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars